We recognise the vital role that carers play in the health and wellbeing of our patients. We believe that involving you in discussions and decisions leads to better care and a smoother experience for everyone involved.
However, healthcare staff have a strict legal duty to keep patient information confidential. This can sometimes create a delicate balance between a patient’s privacy and a carer’s need to know.
Why sharing information is important
We know that including you in decisions—whether they are clinical, practical, or personal—makes things easier for both you and the patient. Open communication helps us provide the best possible support, and we encourage you to talk to our staff about your role as a carer.
When can information be shared?
In most cases, we share information because the patient has given us their explicit consent to do so.
There are rare circumstances where healthcare staff are legally required to break confidentiality (for example, if there is a serious risk of harm to the patient or others). In these cases, our staff follow strict regional guidelines and data protection laws.
What if a patient refuses consent?
If a patient chooses not to share their clinical details, we must respect that decision. However:
- General Information: We can still provide you with general information about an illness, medications, or emotional and practical support. This does not breach confidentiality.
- Essential Care: We aim to provide carers with enough information to ensure the patient is safe and cared for, even if specific private details cannot be disclosed.
What is meant by ‘Lacking Capacity’?
A patient “lacks capacity” if they are unable to understand, retain, or use the information needed to make a specific decision about their care. If a clinician determines a patient lacks capacity, we will act in their “Best Interests” and will almost always involve their primary carer in those discussions.
Enduring Power of Attorney (EPA) and Controllership
Some carers hold an Enduring Power of Attorney. It is important to note:
- Registration: For an EPA to be used, it must be registered with the Office of Care and Protection if the patient is losing their mental capacity.
- Scope: In Northern Ireland, an EPA primarily covers property and financial affairs. For decisions regarding health and social care, our clinicians will consult with the person who has the closest relationship with the patient (the “nearest relative” or primary carer) under the Mental Capacity framework.
How to update your status
If you are a carer, or if you have a legal document (like an EPA) for a patient registered at this practice, please provide us with a copy. We will update the patient’s records to ensure we know who to contact and who is authorised to be involved in their care.
Please contact the Practice if you require further information or wish to register as a carer.